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Who am I?

Hey there, welcome to my blog. My name is Sian, I’m 28, I live in Scotland and I have a chronic illness called M.E.  What is M.E.? M.E stands for myalgic encephalomyelitis. It is also known as chronic fatigue syndrome (CFS).  How long have I had ME?  I developed M.E 2 years ago at the start of September. I was about to start college to study beauty therapy and the day before I had a headache. Ok, no big deal, everyone has headaches. By the evening it had developed into a migraine (you know, when you can’t stand the light, or sounds, and you feel like you’re going to throw up). I didn’t think too much of it and hoped it would be gone by the morning. Well, it didn’t go. In fact, I had that same migraine constantly for 6 months straight.  What did you do?  I got on with it. I started college the next day, and I attended every day I was supposed to until I couldn’t handle it anymore, which was Christmas 2016.  What ...
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Sleep, and we have a guest

My sleep is awful...

My sleep has been terrible since I developed ME. I always needed a lot of sleep, but now it doesn’t matter how much I get, I still feel like crap! Over the last year I have fallen into a bad habit of not being able to sleep before 1am, and then I don’t wake up until midday. I have been on several sleeping aids and they all work for a while, until eventually I have to swap again. And I have done just this; I’m back on a tablet called Melatonin. Here in the UK it’s only available on prescription, not like America where it’s classed as a supplement. 

I was asleep by about midnight last night which is great! Hopefully the same will happen today. 

We have a friend staying with us for a few days and he also has ME. I hate that other people have this horrible illness, but it’s kind of nice chatting with someone who ‘gets it’, you know. It’s times like this when I’m more likely to get sensory overload, having to ‘be on’ wears me out, but I do like to socialise so it’s quite nice having some company. I’m even having a cider! I don’t find I feel any worse if I have a drink, but it’s rare I’ll have more than one. 

Do you have problems with sleep? Is there anything that works for you? 

Thanks for reading. 
That ME Girl


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