Hey there, welcome to my blog. My name is Sian, I’m 28, I live in Scotland and I have a chronic illness called M.E. What is M.E.? M.E stands for myalgic encephalomyelitis. It is also known as chronic fatigue syndrome (CFS). How long have I had ME? I developed M.E 2 years ago at the start of September. I was about to start college to study beauty therapy and the day before I had a headache. Ok, no big deal, everyone has headaches. By the evening it had developed into a migraine (you know, when you can’t stand the light, or sounds, and you feel like you’re going to throw up). I didn’t think too much of it and hoped it would be gone by the morning. Well, it didn’t go. In fact, I had that same migraine constantly for 6 months straight. What did you do? I got on with it. I started college the next day, and I attended every day I was supposed to until I couldn’t handle it anymore, which was Christmas 2016. What ...
I have been quite unwell for the last two weeks, something more than my regular M.E.
You see, since birth I have had problems with my bladder and bowel, I was in hospital several times as a child and regularly saw a paediatrician. I have a diagnosis for my bladder, but my bowel problems haven't been diagnosed. Doctors claimed that I would "grow out" of these, but sadly that didn't happen. As I said, I have been quite unwell, but I'm finally turning a corner and I am about 70-80% better and I couldn't be happier! I thought I would be poorly over Christmas, but now I should be a lot better and more able to enjoy myself. I am having to rely on liquid Oxycodone regularly for an abdomen pain have had since February, but if that is the worst of it I'm happy.
I know myself and my condition a lot better than even a year ago; I know when to push and when to stop, when to keep going and when to give in and rest, and this is the most important lesson to learn when you have a chronic illness. Know yourself, know your new body and listen to it, put yourself first and don't worry what other people think, your health is important and it's your Christmas, too.
Mr. B the blackbird has been appearing more often. Yesterday, Denys's parents came over for lunch and his dad was followed around the garden by Mr. B demanding food, but every time we try to show his mum Mr. B, he typically disappears. It has been colder here in Scotland the last few days, the birds are eating more food, trying to fatten up, and I have seen the house sparrows going into the nests they had over summer in the care home roof opposite our house. It is this time of year that they need all the extra food they can get to survive the cold. If you can, please consider buying some cheap seed to keep them going. Plus, if you have some leftover potatoes (with no salt on them) this Christmas, the birds will enjoy them.
I hope you have a lovely, happy and pain free Christmas.
Thanks for reading
That ME Girl
Comments
Post a Comment