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Who am I?

Hey there, welcome to my blog. My name is Sian, I’m 28, I live in Scotland and I have a chronic illness called M.E.  What is M.E.? M.E stands for myalgic encephalomyelitis. It is also known as chronic fatigue syndrome (CFS).  How long have I had ME?  I developed M.E 2 years ago at the start of September. I was about to start college to study beauty therapy and the day before I had a headache. Ok, no big deal, everyone has headaches. By the evening it had developed into a migraine (you know, when you can’t stand the light, or sounds, and you feel like you’re going to throw up). I didn’t think too much of it and hoped it would be gone by the morning. Well, it didn’t go. In fact, I had that same migraine constantly for 6 months straight.  What did you do?  I got on with it. I started college the next day, and I attended every day I was supposed to until I couldn’t handle it anymore, which was Christmas 2016.  What ...
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Sensory overload is becoming a big problem

It's bad, worse than it has ever been before...

I keep a bullet journal (which I can talk about in another post if anyone is interested) and in it I keep a record of my health. I monitor how often I have specific symptoms, one being sensory overload. 

I have talked about it before, I know, and it hasn't changed, but it has gotten worse. I'm now getting it at least once a day, sometimes two or three times a day, and it is limiting my life. I can't participate in anything while it's happening, I can't hold a conversation, watch TV or even think. In go the earphones and on goes the music (which I am currently doing).

It is coming on randomly, there doesn't seem to be any rhyme or reason to it, one minute I'm fine and involved in whatever I'm doing, the next I'm wanting to run for the hills. I don't know when it will happen and I don't know how to stop it. What are you meant to do? It hurts, it actually makes my head hurt, not like a headache, just a generalised pain in my head and my heart rate increases.

This is my November sensory overload record.


Half completed squares means that it happened, but I didn't have to fully retreat to get rid of it .

This is December's record so far. As you can see, it is happening more often.



I don't get why it's worse, generally I'm doing pretty well. My sleep has improved, I'm in less pain and I'm not pushing too hard. It also seems to happen more in the evenings after dinner when Denys and I are relaxing. I'm fine, fine, fine, BOOM... overload. If anyone has any ideas, please let know how. 

Thanks for reading.
That ME Girl

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