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Who am I?

Hey there, welcome to my blog. My name is Sian, I’m 28, I live in Scotland and I have a chronic illness called M.E.  What is M.E.? M.E stands for myalgic encephalomyelitis. It is also known as chronic fatigue syndrome (CFS).  How long have I had ME?  I developed M.E 2 years ago at the start of September. I was about to start college to study beauty therapy and the day before I had a headache. Ok, no big deal, everyone has headaches. By the evening it had developed into a migraine (you know, when you can’t stand the light, or sounds, and you feel like you’re going to throw up). I didn’t think too much of it and hoped it would be gone by the morning. Well, it didn’t go. In fact, I had that same migraine constantly for 6 months straight.  What did you do?  I got on with it. I started college the next day, and I attended every day I was supposed to until I couldn’t handle it anymore, which was Christmas 2016.  What ...
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Stupid ME

I have been looking forward to today all week, but once again ME ruins the party. 

I woke up in pain and felt weak and shaky, I hoped it would ease off, instead it's just getting worse. We were supposed to be having a lunch date and then I would do some shopping, but when we got in the car I realised I wasn't going to feel better and so there was no point going out. 

It feels as though my skeleton is shaking on the inside, and like I'm going to pass out or fall over with weakness. I spent an hour doing my hair and makeup just for it to go to waste. I don't often have the strength to put on makeup and go out so it was a big deal to me, but this cruel illness has taken the day away from me. It could have picked any other day this week to show up, any other day when I was already at home with no plans, but it chose today.

Since becoming unwell, I have found myself wishing more and more days away, hoping for a good day, but with the good days come the bad days, like today. ME likes to remind you that you're not well, just when you think you've turned a corner it comes back as an unwelcome visitor to spoil everything. I have been telling people about how good my ME has been recently, looks like it came back to bite me in the ass!  

So here I am, back in bed and feeling sorry for myself, my only wish now is that I can sleep until this passes and I can feel like me again. 

Thanks for reading.
That ME Girl 



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Comments

  1. Siobhan J4 February 2019 at 04:46

    Sorry to read about your bad day, bless you. Not good timing and typical though, on a day you have plans. There is a quote I remind myself of at times like this - "The secret to happiness is letting every situation be what it is, instead of what you think it should be". I've got this on my fridge and it helps me focus and deal with issues that come up when things don't go to plan. It's difficult to change plans and not be annoyed and frustrated however but this quote helps ground me and calms me down so that I can deal with the change xx

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    Replies
    1. thatmegirl4 February 2019 at 05:25

      Thank you for sharing the quote, it's a good one, I'll write it in my bullet journal. I think I've seen it on your fridge actually xxx

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